HigherYCN Cancer Nursing Legacy Document - March 2013

CancerNursing Legacy Document

June Toovey–March 2013

Introduction

This Legacy document wi l l provide information on the work that has been undertaken by the YCN thatmay be useful tosupport and inform theworkof the SCN in theareaof cancer Nursing

Generic Cancer Nursing

There is a lead cancer nurses group with the Lead cancer nurses from across the organisation,university representatives, nurse consultants and Nursing leads forchi ldren’s cancerand TYA Thegroup have also been significantly involved in the supportive care aspects included in the supportivecare legacy document

The achievements foracross al l cancer nursing are as fol lows:

 The development and agreement and on-going implementation of a cancernursing strategic

Strategic Development

 Agreement to use the Distress Thermometer as the HNA tool across the network with ageneric tool and some site specific tools (al l avai lable on the YCN Website)Agreement ofguidel ines for using the DT(see supportive care legacy document)

 Agreement of CNS development recommendations (fol low l ink below)http://wwwycn nhs uk/html/downloads/ycn-leadnurses-developmentcnsroleincancer-jan2013 pdf

 Agreement of a document to support the development of business cases for Nurse ledserviceshttp://www ycn nhs uk/html/downloads/ycn-nurseledservicetemplate-201 1 pdf Agreement and use of a cancer nursing education programme with competencies for useacross thenetworkhttp://www ycn nhs uk/html/events/cancercareeducation2009 php(currently in theprocess of being updated)

 Currently working with the SHA education commissioners Leads University and BradfordUniversity regarding the avai labi l ity of HEI degree programmes forcancer The CNSDevelopment recommendations being used as the educational requirements Please contactKrystina Kozlowska and Al ison Harwood forfurther information

 Col lecting and sharing CNS Census data across the network,which includes information onthe number of new patients per WTE CNS:

ycn_cns_workloads_

2011_version2.ppt

Lead Cancer Nurse Contacts

Leeds–Krystina Kozlowska, Lead Cancer Nurse–krystina kozlowska@leedsth nhs uk

Bradford–Ruth Logan, Lead Cancer Nurse–ruth logan@bthft nhs uk

Airedale–Dawn Gul l iford,CancerManager–dawn gul l iford@anhst nhs uk

Calderdale and Huddersfield–Al ison Harwood, Lead Cancer Nurse–al ison harwood@cht nhs ukMid Yorkshire–Marie Wi lde, Lead Cancer Nurse–marie wi lde@midyorks nhs uk

Harrogate–Paula Middlebrook, Lead Cancer Nurse–paula middlebrook@hdft nhs uk

York– Shirley Chi ld, Joint Lead Cancer Nurse–shirley chi ld@york nhs uk

Diane Burwel l , Joint Lead cancer Nurse–diane burwel l@york nhs uk

Scarborough–Kathryn Sartain Lead Cancer Nurse–Kathryn sartain@york nhs uk

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Other useful contacts

Tricia Feber,Nurse Consultant acute o’ ncology Harrogate–patricia feber@hdft nhs uk

Rachel Hol l is Lead NurseforChi ldrens CancerLeeds–rachel hol l is@leedsth nhs uk

Sue Morgan Nurse Consultant TYA Leeds–sue morgan@leedsth nhs uk

Vanessa Taylor Senior Lecturer Bradford University(on secondment to the Higher EducationAcademy)–vanessa taylor@heacademy ac uk

Cancer Nursing and Special istSite Specific CancerGroups

The fol lowing provides information achievements of and issues identified by the network nursing andspecial ist groups These groups meet on a regular basis and support the work of the Network NSSGsby taking on aspects of work on their behalf The work of the nursing and special ist groups focusseson the supportive aspects of care The groups have strong l inks into the NSSGs with the chairof theNurses and special ist groups being having a lead rolewithin the NSSGs

Key Issues

The fol lowing two key issues were identified by al l the groups as important to be continued to supporton-going improvements to cancer services and patient experience:

 Maintaining and improving cross organisational col laboration to ensure continuity of care forpatients across the pathway and appropriate communication between teams at hand overpoints

 Maintaining connections, sharing good practice and continuing the effective work of the groupand multi professional working

Breast Special ist Group

The group includes membership form breast CNSs across the network as wel l as representativesfrom radiotherapy, chemotherapy and lympoedema Attendance at meetings overthe last few monthshas not been as good as anticipated and the group are looking at the best was to encourageengagement

The achievements of the group are as fol lows:

 Coordinating education events for Nurses and support staff

 Development of specific patient information materials for use across the network(avai lable onthe YCN website)

 Agreement of Information pathways for across the network and Information prescription Supported a project to highl ight the support requirements of patients with secondary breastcancerand the avai labi l ity of the resource This led to identification of gaps and thesuccessful bid by LTHTto Macmi l lan to fund a post forthree years as part of their breast carenurseteam

 Supported the network project on changes to fol low-up for early stage breast cancer,work ison-going to implement the fol low–up pathway across the network

Issues identified:

 Ensuring effective and equitable access to support for patients with secondary breast canceracross the network

 Sustainable implementation of the early breast cancer fol low-up model across the networkFor further information contact:

Jane Nicholson–Breast Care Nurse, Leeds Teaching Hospitals Trust

Jane Nicholson@leedsth nhs uk

Mandy Blackburn–Breast Care Nurse,Bradford Teaching Hospitals Foundation trust

Mandy blackburn@bthft nhs uk

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Chemotherapy Nurses Group

The group includes membership from the lead chemotherapy nurses organisations across thenetwork

Achievements of the group include:

 The development of Checking,Administration and Handl ing of Systemic Anti-Cancer (SACT)(Parenteral and Oral)Guidel ines–avai lable on the YCN website

 The development of Management of Central Venous Access Devices Guidel ines–Avai lableon the YCN website

 Development of the criteria for acting as an assessor of Competence–Avai lable on the YCNwebsite

 Development of Chemotherapy training pack and education programmes -Avai lable on theYCN website

 Development of competency documents for: chemotherapy and Nurse-led chemotherapy pre-assessment -Avai lable on the YCN website

 Development of the Chemotherapy education programme workbook and the Chemotherapyeducation programme workbook for low risk administration forcommunity nurses and level 1POSCUs-Avai lable on the YCN website

For further information contact:

Jackie Swire–Lead Chemotherapy Nurse,Calderdale and Huddersfield Foundation Trustjackie swire@cht nhs uk

Shirley Chi ld–lead Chemotherapy Nurse,York NHS Foundation Trust

Shirley chi ld@york nhs uk

Chi ldren’sandYoung People’sLead NursesGroup

This is ajoint group across the Yorkshire cancer Network and the North East Yorkshire and HumberCl inical Al l iance The group membership includes the Lead Nurses for Chi ldren andYoung Peopleacross the two network areas

The groups work programme includes the fol lowing:

 The development of training and education including chemotherapy and competencyassessments

 The development of guidel ines for Chemotherapy administration and Central VenousCatheter care

 The development of a patient experience survey

 Development work around the Key worker concept and Hol istic needs assessmentFor further information contact:

Rachel Hol l is–Lead Nurse Chi ldren’s Cancer, Leeds Teaching Hospitals Trust

Rachel Hol l is@leedsth nhs uk

Colorectal Nurses Group

The group includes membership forColorectal Cancerand Stoma Nurse Special ists fromorganisations across the network

The achievements of the group are as fol lows:

 CNS advanced practice interventions audit

 Development of the colorectal specific Distress thermometer

 Agreement of colorectal patient information pathway and pi loting information prescription Development of care planning at the end of treatment

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 Agreed action points for across the network from the national cancer patient experiences u rvey

Identified issues:

 Continuing to providing a col lective voice for colorectal cancer nursing

Contact for further information:

Diane Burwel l–Colorectal CNS York NHS Foundation Trust diane burwel l@york nhs uk

Donna Kel lett–Colorectal CNS Bradford Teaching Hospitals Foundation Trustdonna kel lett@bthft@nha uk

Gynae NursesGroup

The group membership is Gynae Nurse CNSs from across the Network

The achievements of the group are as fol lows:

 Developed network wide information materials (avai lable on the YCN website)

 Agreed an information pathway

 Active involvement in the work of the NSSG

 Run Education events for nurses and support staff

 Developed,with Bradford University a 30 credit module on the Management of Gynaecology

Oncology patients

Issues identified:

 To ensure identified gaps in service can be addressed using an equitable approach acrossthe network

Contact for further information:

ClaireParkinson–Gynae CNS Airedale NHS Trust -Claire Parkinson@anhst nhs uk

Haematology Nurses Group

This is ajoint group across the Yorkshire Cancer Network and the North East Yorkshire and HumberCl inical al l iance(NEYHCA)and has been hosted by NEYHCA forthe last 3 years

The group has focussed on having active membership with in thejoint NSSG,Education and sharinggood practice

The group have commenced a work stream with the HMRN identifying patients’ needs at the end oftreatment to inform the development of‘survivorship’programmes and support

For further information contact:

Kay Beadle-Macmi l lan CNS Haematology,Queens Centre for Oncology and HaematologyCastle Hi l l Hospital -Kay Beadle@hey nhs uk

Head and NeckSpecial istGroup

The group membership includes Head and Neck Special ist nurses,Dieticians and Speech andLanguage special ists The group enhances and feeds into the work if the Head and Neck Site Specificgroup

The achievements of the group are as fol lows:

 Network Alcohol Detox Guidel ines–avai lable on the YCN website

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 Discharge checkl ist to support patient discharge from a special ist service back to their localsupport team Thegroup are currently auditing the useof the check l ist in practice –avai lableon the YCN website

 Head and Neck Patient information pathway agreed

 Head and Neck Patient Information prescription is being developed and tested on behalf ofthe group in York

 Network Guidance for local Nasogastric tube replacement–awaiting sign off by the NSSG Distress Thermometerfor Head and Neck canceragreed and being used with in al l special istteams

 Network standardised guidel ines for Speech and Language Therapy in development Network Head and Neck Rehabi l itation pathway in development

 Macmi l lan Head and Neck Whole system/pathway project continuing

 Network Head and neck patient experience survey developed based on the national patientsurvey and including additional specific head and neck related questions

 Network standardised guidel ines for Dietetic input in development

 Contribution at the yearly Head and Neck education events

 Post treatment cl inic audit of patient concerns at 3,6 and 12 months post treatmentundertaken at Bradford as a test forthe group

Identified issues:

 Agree pathways of care and monitorto ensure being fol lowed

Contacts for further information:

Sarah Cost–Head and Neck CNS Bradford Teaching Hospitals Foundation Trustsarah cost@bthft nhs uk

Barbara Machin–Special ist Dietician York Foundation Trust Barbara machin@york nhs ukLung Nurses Group

The group includes membershipforLung CancerNurse Special ist from organisations across thenetwork

The achievements of the group are as fol lows:

 Involvement in educational events

 Set up network wide Mesothel ioma support groups

 Support the development of the surgical CNS post in Leeds

 Nurse-led document/protocol is in the process of being reviewed and updated

 Development of Lung cancer specific patient survey for use across the network based on thenational cancer patient survey

 Development of a lung cancer patient information pathway and adaption of that into a patientinformation prescription

Identified Issues:

 Lack of specific support for patients with Mesothel ioma across the network

 Sustainabi l ity of the surgical CNS post in Leeds

Contact for further information:

Claire Waddington–Lung Cancer CNS Airedale NHS Foundation Trustclaire waddington@anhst nhs uk

Skin NursesGroup

The group includes membership forSkin Cancer CNSs from organisations across the networkThe achievements of the group are as fol lows:

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 Developed and agreed a survivorship pathway forskin cancer

 Developed and agreed skin cancerspecific distress thermometer

 Developed and agreed a skin cancer hol istic assessments needs document includingsurvivorship assessment

 Agreement of the skin cancer patient information pathway and pi loting an informationprescription

 Developed patient information for skin cancer

 Developed a skin cancer patient survey for use across the network based on the nationalcancer patient survey

 Agreed the CNS intervention pathway for referral into and out of the cancer centre Developed and agreed skin cancer Teenager and Adolescent pathway

 Developed and agreed skin cancer paediatric pathway

 Service user representation part of group

Contact for further information:

Catherine Wheelhouse Skin CancerCNS Bradford Teaching Hospitals Foundation Trust

Catherine wheelhouse@bthft nhs uk

UpperGI and HPBSpecial istGroup

Thegroup includes membershipforSpecial ist UpperGI and HPB nursespecial ists across thenetwork and special ist Dieticians working in Upper GI cancer

The achievements of the group are as fol lows:

 The inclusion of dieticians intothe group enabl ing multi professional working

 Pi loting of dietetic and nurse led fol low-up in Bradford for rol l out across the network Dietetic guidel ines in development for use across the network

 Involvement in the development of Rehabi l itation pathways

 Supporting the development of an enhanced recovery programme forUpperGI cancerbeingundertaken in Bradford

 Agreement of a patient information pathway and pi loting the use of information prescriptions Involvement in network education events including the successful use of service userinvolvement at events to share their stories

Identified issues:

 The need to incorporate the care of l iver cancer into future work

Contact for further information:

Aidan Henry–UpperGI Cl inical Nurse Special ist–Airedale HNS Foundation trust -aidan henry@anhst nhs uk

Urology NursesGroup

The urology nurses group membership is made upfrom Urology CNSs across the network The grouphas had a period where it has been difficult for members to attend and is currently in the process ofre-establ ishing itself

The achievements of the group are as fol lows:

 Service user representatives being part of the work of the group

 Information pathways agreed for the different urological cancers

 Information prescriptions forthe different urological cancers

Contact for further information:

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Natal ie Chester–Urology CNS Leeds trust–Natal ie chester@leedsth nhs uk

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